Catalog Search Results
Author
Pub. Date
2021.
Language
English
Formats
Description
"A YA nonfiction story about Ariel and her twin sister's experience living with Crouzon Syndrome" --
At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome, a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive the disease. They endured numerous appearance-altering procedures as they grew up. Surgeons would break the bones in their heads and faces to...
Author
Language
English
Description
I am ugly. There's a mathematical equation to prove it. At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome - a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive the disease. Growing up, Ariel and her sister endured numerous appearance-altering procedures. Surgeons would break the bones in their heads and faces to make room for their growing organs....
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